The information on this site has been written by a patient advocate using many source documents.  Patients should defer to their physicians for medical advice and the original source documents for medical information.  Our source page lists all the articles and links used.  Much information was summarize from the Ehlers-Danlos website and can be found at https://www.ehlers-danlos.com

 

For specific source information about the clinical classification of the Ehlers-Danlos Syndromes and their diagnostic criteria, please reference The 2017 International Classification of the Ehlers-Danlos Syndromes article in the American Journal of Medical Genetics(Part C: Seminars in Medical Genetics)at this link:

 

https://www.ehlers-danlos.com/2017-eds-international-classification/

 

Additional source information included in the summary about hEDS can be found at the following link: https://www.ncbi.nlm.nih.gov/books/NBK1279/

 

Hypermobile Ehlers-Danlos Syndrome Synonyms: Benign Joint Hypermobility Syndrome, EDS Hypermobility Type, EDS Type III, Ehlers-Danlos Syndrome Hypermobility Type, Ehlers-Danlos Syndrome Type III, hEDS, Joint Hypermobility Syndrome

 

Howard P Levy, MD, PhD

Here are the specific links used for source data from the Ehlers-Danlos Society Website (February 9, 2019)

Ehlers-Danlos Society News Tab on Ghent pulled February 9, 2019 at https://www.ehlers-danlos.com/ghent2018/

Project ECHO information was sourced on February 9, 2019 from https://echo.unm.edu

 

Informational comments about males with EDS [Castori et al 2010b] can be found at https://www.ncbi.nlm.nih.gov/books/NBK1279/

Questions? Contact us!