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Our Mission

•    Make EDS/HSD prevalence, medical and emotional health needs more visible to the local       health care community  

•    Update health care professionals, patients and the community about EDS, HSD and their associated conditions including the most recent diagnostic criteria and care guidelines

•    Foster collaborations between patients, health care professionals, supporters and researchers to further support for EDS throughout the patient's life cycle

•    Facilitate mentoring relationships between local and national clinicians to increase local expertise

•    Collaborate with researchers to address critical research questions to further understanding of health impacts and most effective treatments

•    Partner with other organizations supporting EDS, rare diseases, mental health and pain management to further our shared missions

•    Fundraise to support education initiatives including EDS seminars

•    Make hope a possibility

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