Our Mission

•    Make EDS/HSD prevalence, medical and emotional health needs more visible to the local       health care community  


•    Update health care professionals, patients and the community about EDS, HSD and their associated conditions including the most recent diagnostic criteria and care guidelines


•    Foster collaborations between patients, health care professionals, supporters and researchers to further support for EDS throughout the patient's life cycle


•    Facilitate mentoring relationships between local and national clinicians to increase local expertise


•    Collaborate with researchers to address critical research questions to further understanding of health impacts and most effective treatments


•    Partner with other organizations supporting EDS, rare diseases, mental health and pain management to further our shared missions


•    Fundraise to support education initiatives including EDS seminars


•    Make hope a possibility

Questions? Contact us!