Who ARe We?
EDS KC Collaboration is a non-profit group who aims to:
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• Make EDS/HSD prevalence, medical and emotional health needs more visible to the local health care community
• Update health care professionals, patients and the community about EDS, HSD and their associated conditions including the most recent diagnostic criteria and care guidelines
• Foster collaborations between patients, health care professionals, supporters and researchers to further support for EDS throughout the patient's life cycle
• Facilitate mentoring relationships between local and national clinicians to increase local expertise
• Collaborate with researchers to address critical research questions to further understanding of health impacts and most effective treatments
• Partner with other organizations supporting EDS, rare diseases, mental health and pain management to further our shared missions
• Fundraise to support education initiatives including EDS seminars
• Make hope a possibility